Communication Tips: A guide for any parent navigating a rare diagnosis
This resource provides tips on how to effectively communicate with doctors, teachers, family members, and more while discussing your child’s care and condition.
This resource provides tips on how to effectively communicate with doctors, teachers, family members, and more while discussing your child’s care and condition.
An interactive discussion on the unique journey of caregivers, and tools to unite and strengthen the Duchenne community in their shared experience.
Una discusión interactiva sobre el viaje único de los cuidadores y herramientas para unir y fortalecer a la comunidad de Duchenne en su experiencia compartida.
El enfoque del seminario web de hoy es ayudar a educar y conectar a las familias con el panorama de los ensayos clínicos.
Associate Professor of Pediatrics, Neurology and Neurotherapeutics
University of Texas Southwestern
This resource presents advice and resources on how to communicate a Duchenne diagnosis to your family and children.
An interactive presentation focused on harnessing creativity in day-to-day life with inclusive activities, games and exercises, as well as utilizing adaptive technology/equipment to surpass expectations.
CureDuchenne Certified Physical Therapist
CureDuchenne Physical Therapy Program
Occupational Therapist III
Children’s Health and Rehabilitation Services
Quantum Product & Technical Education Manager
Pride Mobility
Paul, Debra and Hawken Miller discuss FUTURES 2022, current advancements in therapies and next generation investments as well as programs CureDuchenne offers to improve the quality of life for those impacted by Duchenne.
An overview of CureDuchenne Link.
Senior Director of Clinical Operations | Director, CureDuchenne Link
CureDuchenne
This resource provides guides to proper message and aquatic therapy techniques, safe transfers, and stretching routines approved by our CureDuchenne Certified Physical Therapists.