Beginning the Journey - diagnosed 0-3 years Archives - Page 5 of 8

Duchenne: An Overview for Educators

This resource provides multiple handouts to help inform your child’s educator of the specialized needs in a school setting.

CureDuchenne

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Duchenne: Una Visión General Para Educadores

Este recurso proporciona varios folletos para ayudar a informar al educador de su hijo sobre las necesidades especializadas en un entorno escolar.

CureDuchenne

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Edgewise Therapeutics

Edgewise Therapeutics presentation.

Joanne Donovan, MD, PhD

Chief Medical Officer

Edgewise Therapeutics

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Emergency Care

This resource presents information on emergency care guidelines for individuals with Duchenne, and tips on how to communicate with emergency care providers in the event of an urgent hospital visit.

Stefan Malin, MD, MS

Pediatric Critical Care Fellow

Riley Hospital for Children at IU Health

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Emergency Care Considerations for Individuals Living with Duchenne

This resource offers information for parents, caregivers and individuals with Duchenne about the specialized aspects of emergency care for those with Duchenne.

CureDuchenne

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Estándares Nutricionales para el cuidado de La Distrofia Muscular de Duchenne

Esta presentación se centra en las pautas nutricionales para las personas con distrofia muscular de Duchenne.

Lucia Briceno MS, RDN, CSP, CNSC

Dietista Nutricionista Registrada

Children's Hospital of Los Angeles

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Umme Vahanvaty, MS, RD, CS

Registered Dietitian Nutritionist

Children’s Hospital of Los Angeles

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Exon Skipping and Read Through Agents Panel

A brief introduction on the rationale behind mechanisms of endogenous dystrophin restoration, like exon skipping and read through agent therapies, followed by critical information and updates from the companies in this space. Moderated discussion included.