Communication Tips: A guide for any parent navigating a rare diagnosis
This resource provides tips on how to effectively communicate with doctors, teachers, family members, and more while discussing your child’s care and condition.
The School section provides information on topics related to communicating with schools, IEPs, accommodations/modifications and more.
This resource provides tips on how to effectively communicate with doctors, teachers, family members, and more while discussing your child’s care and condition.
This resource provides multiple handouts to help inform your child’s educator of the specialized needs in a school setting.
Una presentación interactiva enfocada en definir y construir su equipo en la escuela, abordando los matices de un IEP o plan 504 para una persona con Duchenne, y un ejercicio de juego de roles sobre cómo comunicar de manera efectiva las necesidades de su familia en una reunión escolar.
Duchenne Mother, Grandmother and Advocate
4 Jake's Sake | CureDuchenne
A letter from Jennifer Wallace Valdes, PT to share with your child’s teachers. This document serves to familiarize them with Duchenne, the physical limitations posed, and reasonable accommodations for the school environment.
This resource discusses managing Duchenne in a school setting: IEP vs. 504 Plans, modifications and accomodations in a school setting, and communicating with educators about Duchenne.
An interactive presentation focused on defining and building your team at school, addressing the nuances of an IEP or 504 plan for an individual with Duchenne, and a role-playing exercise on how to effectively communicate your family’s needs in a school meeting.
Duchenne Mother, Grandmother and Advocate
4 Jake's Sake | CureDuchenne