Communication Tips: A guide for any parent navigating a rare diagnosis
This resource provides tips on how to effectively communicate with doctors, teachers, family members, and more while discussing your child’s care and condition.
Title: CureDuchenne
Organization: CureDuchenne
Bio: CureDuchenne
This resource provides tips on how to effectively communicate with doctors, teachers, family members, and more while discussing your child’s care and condition.
This resource offers information for Emergency Medical Services professionals about the specialized aspects of emergency care for those with Duchenne.
This resource provides multiple handouts to help inform your child’s educator of the specialized needs in a school setting.
Este recurso proporciona varios folletos para ayudar a informar al educador de su hijo sobre las necesidades especializadas en un entorno escolar.
This resource offers information for parents, caregivers and individuals with Duchenne about the specialized aspects of emergency care for those with Duchenne.
This resource offers important information regarding genetic testing for newly diagnosed families.