The Clinical Care section provides information on topics related to the standards of care for Duchenne, care coordination, transition guidelines and more.
Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center
Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center
This resource presents the history of Duchenne muscular dystrophy and provides a basic understanding of the genetics, management and treatment of the diesease.
Samiya Ahmad, MD
Assistant Professor of Pediatrics, Child Neurology and Sleep Medicine | Medical Director, Comprehensive Neuromuscular Center
Baylor College of Medicine | Children's Hospital of San Antonio
This webinar, in partnership with the University of Kansas Medical Center, explores topics like achieving milestones, quality of life, and setting goals in families navigating Duchenne muscular dystrophy. The panelists also discuss how to incorporate quality of life metrics into clinical care.
This resources provides a introduction to the common multidisciplinary care team for Duchenne and their individual functions, as well as tips on coordinating this team-based approach.
This resource presents information on genetic carrier health, carrier testing options and resources, family planning education, and carrier burden information.
Kimberly Nugent, CGC
Certified Genetic Counselor
Children's Hospital of San Antonio, Baylor College of Medicine
