Lauren Morgenroth, MS, CGC

Title: Chief Operating Officer

Organization: TRiNDS

Bio: Lauren Morgenroth, MS is the Chief Operating Officer of TRiNDS and has had a career in multicenter clinical trial operations for over 20 years. She joined the CINRG, an academic clinical trial consortium for which TRiNDS is now the official Coordinating Center, in 2004.Lauren has authored over two dozen publications, many based on work when she managed the CINRG Duchenne Natural History Study and working groups on disease-causing mutations in Duchenne. Lauren has also done work on barriers to engagement in rare disease research.

2019 FUTURES: FAMILY Panel

This panel discusses genetic carrier health, mental health and coping skills, and assistance for Duchenne families.

Virginia Kimonis, MD, MRCP

Professor, Department of Pediatrics, Division of Genetics and Genomic Medicine

University of California, Irvine Medical Center, Children’s Hospital of Orange County

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Lauren Morgenroth, MS, CGC

Chief Operating Officer

TRiNDS

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Ashley Yee, MSW

Director of Patient Engagement

Global Genes

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Laurie Miller, CSW

Clinical Social Worker

Children's Hospital of Los Angeles

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Leona Filis

Special Needs Attorney

The Filis Law Firm, P.C.

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Kelly Maynard

Co-Founder

The Duchenne Family Assistance Program

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Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

DMD Clinical Trials: An Overview

This resource presents information on the clinical trial process, common clinical trial terms, updated trial processes due to telehealth, and more.

Lauren Morgenroth, MS, CGC

Chief Operating Officer

TRiNDS

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Ana Christensen, MPH

Lead Project Manager, Strategic Solutions

TRiNDS

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

The Family’s Role in Research Panel

A deep dive into the world of clinical and academic research, including input from multiple stakeholders, with the family at the center of it all.

Matthew Alexander, PhD

Assistant Professor in Pediatric Neurology and Genetics

Children’s of Alabama | University of Alabama at Birmingham

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Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

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Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

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Joanna Kemp, BSN, RN

Senior Director of Clinical Operations | Director, CureDuchenne Link

CureDuchenne

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Lauren Morgenroth, MS, CGC

Chief Operating Officer

TRiNDS

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Clint & Leslie Porter

CureDuchenne Champion Family

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years