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The Community section provides information on topics related to finding and building a supportive community, family support resources, inspiring messages from young men with Duchenne and more.

2019 FUTURES: FAMILY Panel

This panel discusses genetic carrier health, mental health and coping skills, and assistance for Duchenne families.

Virginia Kimonis, MD, MRCP

Professor, Department of Pediatrics, Division of Genetics and Genomic Medicine

University of California, Irvine Medical Center, Children’s Hospital of Orange County

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Lauren Morgenroth, MS, CGC

Chief Operating Officer

TRiNDS

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Ashley Yee, MSW

Director of Patient Engagement

Global Genes

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Laurie Miller, CSW

Clinical Social Worker

Children's Hospital of Los Angeles

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Leona Filis

Special Needs Attorney

The Filis Law Firm, P.C.

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Kelly Maynard

Co-Founder

The Duchenne Family Assistance Program

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Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

2019 FUTURES: FRIENDS Panel

This panel discusses inclusivity and the importance of meaningful relationships for individuals with Duchenne.

Hawken Miller

Journalist

Washington Post

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Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

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Holly Van Meeteren, OTR/L

Occupational Therapist

Tustin Unified School District

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Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

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Benjamin Tilford

Program Lead

Assistance League of Tustin: Assisteens® Buddy

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Growth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

2019 FUTURES: FUN Panel

This panel discusses adaptive sports, activities, and equipment for individuals with Duchenne.

Armando Ornelas

Head Coach

LA Avengers Power Soccer Team

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Austin Edenfield, ATP

Quantum Product & Technical Education Manager

Pride Mobility

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Melissa McIntyre, PT, DPT

Physical therapist

University of Utah Health

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Tanja Kari, MS

Program Director

TRAILS

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Jeffrey Rosenbluth, MD

Medical Director, Spinal Cord Injury Acute Rehabilitation Program

University of Utah Health Sciences Center

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Growth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

2021 FUTURES Quality of Life Panel: Defining Happiness

Focused on the intersection between physical needs and living a fulfilling life.

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

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Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

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Pradeep P.A. Mammen, MD, FACC, FAHA

Associate Professor of Medicine and Co-Director

Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center

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Tom McNalley, MD

Associate Professor of Pediatrics

University of California San Francisco Benioff's Children's Hospitals

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Brenda Wong, MD

Professor of Pediatrics and Neurology and Director

UMass Duchenne Muscular Dystrophy Program at the University of Massachusetts Medical School

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

2021 FUTURES Quality of Life Panel: Easing the Burden

Focused on engaging families in conversations about the load they carry and how to manage life as a caregiver.

Taylor Berhow, MSW, MPA

Social Worker and Neuro-behavioral Health Specialist

University of Utah Health

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Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

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Richard Kravitz, MD

Professor of Pediatric Pulmonary and Sleep Medicine

Duke University

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Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

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Lori Safford

Duchenne Mother and Advocate

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

2021 FUTURES: Keynote Panel

An inspiring conversation about living in the moment with a rare diagnosis.

Sean Baumstark

Co-Founder

Two Disabled Dudes

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Kyle Bryant

Co-Founder

Two Disabled Dudes

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Jake Marrazzo

Living with Duchenne

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Glenn Olesen

Living with Duchenne

GlennDane Adapt and Conquer

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Tanner Rico

Living with Duchenne

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years