Marissa Penrod

Title: Co-Founder

Organization: The Duchenne Family Assistance Program

Bio: Kelly Maynard and Marissa Penrod are the co-founders of the Duchenne Family Assistance Program, affectionately referred to as “D-FAP”. Marissa and Kelly each have sons with Duchenne. The program has two key priorities – to offer families financial assistance with expenses related to the care of a child or young adult with Duchenne, and to provide help and expertise to families who need access to recommended treatments and equipment, clinical care, and social services.

2019 FUTURES: FAMILY Panel

This panel discusses genetic carrier health, mental health and coping skills, and assistance for Duchenne families.

Virginia Kimonis, MD, MRCP

Professor, Department of Pediatrics, Division of Genetics and Genomic Medicine

University of California, Irvine Medical Center, Children’s Hospital of Orange County

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Lauren Morgenroth, MS, CGC

Chief Operating Officer

TRiNDS

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Ashley Yee, MSW

Director of Patient Engagement

Global Genes

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Laurie Miller, CSW

Clinical Social Worker

Children's Hospital of Los Angeles

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Leona Filis

Special Needs Attorney

The Filis Law Firm, P.C.

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Kelly Maynard

Co-Founder

The Duchenne Family Assistance Program

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Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

2021 FUTURES Quality of Life Panel: Easing the Burden

Focused on engaging families in conversations about the load they carry and how to manage life as a caregiver.

Taylor Berhow, MSW, MPA

Social Worker and Neuro-behavioral Health Specialist

University of Utah Health

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Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

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Richard Kravitz, MD

Professor of Pediatric Pulmonary and Sleep Medicine

Duke University

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Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

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Lori Safford

Duchenne Mother and Advocate

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

Community of Caregivers

An interactive discussion on the unique journey of caregivers, and tools to unite and strengthen the Duchenne community in their shared experience.

Laura McLinn

Founder

Best Day Ever Foundation

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Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

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Leslie Porter

Family, Duchenne Advocate

Family, Duchenne Advocate

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

Comunidad de cuidadores

Una discusión interactiva sobre el viaje único de los cuidadores y herramientas para unir y fortalecer a la comunidad de Duchenne en su experiencia compartida.

Laura McLinn

Founder

Best Day Ever Foundation

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Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

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Leslie Porter

Family, Duchenne Advocate

Family, Duchenne Advocate

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Video
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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years