Title: Founder
Organization: Best Day Ever Foundation
Bio: Laura is the founding president of the Best Day Ever Foundation. She and her husband Jeff have been married for 17 years and are the parents of Jordan, age 13, living with Duchenne, as well as two teenage daughters, Bella and Danica. Laura received her master's degree in education from Indiana University and taught mathematics in the public school system for twelve years before starting her own business, Indy Learning Center. She now uses her education background to lead educational workshops for families living with Duchenne to share information on a wide variety of topics including Medicaid Waivers, IEPS, Homeschooling with Duchenne, and more. Laura is also a consultant and an advocate for individuals living with Duchenne and other rare diseases. Laura and her son Jordan were instrumental in helping to get the Indiana state and the federal Right to Try laws passed. The federal law bears her son's name. She continues to work with members on both sides of the aisle at both the state and federal levels to advocate for policy changes that benefit patients living with rare diseases. She is passionate about helping families access treatments and also helping families learn about every resource available to help navigate the rare disease journey.
An interactive discussion on the unique journey of caregivers, and tools to unite and strengthen the Duchenne community in their shared experience.
Una discusión interactiva sobre el viaje único de los cuidadores y herramientas para unir y fortalecer a la comunidad de Duchenne en su experiencia compartida.