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Comunidad de cuidadores

Una discusión interactiva sobre el viaje único de los cuidadores y herramientas para unir y fortalecer a la comunidad de Duchenne en su experiencia compartida.

Laura McLinn

Founder

Best Day Ever Foundation

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Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

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Leslie Porter

Family, Duchenne Advocate

Family, Duchenne Advocate

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Beginning the Journey - diagnosed 0-3 yearsGrowth and Transformation - diagnosed 3-6 yearsSpreading Wisdom - diagnosed 6+ years

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