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Duchenne Muscular Dystrophy Emergency Information for ED Staff
This resource offers information for Emergency Medical Services professionals about the specialized aspects of emergency care for those with Duchenne.
Emergency Care
This resource presents information on emergency care guidelines for individuals with Duchenne, and tips on how to communicate with emergency care providers in the event of an urgent hospital visit.
Stefan Malin, MD, MS
Pediatric Critical Care Fellow
Riley Hospital for Children at IU Health
Video
Emergency Care Considerations for Individuals Living with Duchenne
This resource offers information for parents, caregivers and individuals with Duchenne about the specialized aspects of emergency care for those with Duchenne.
CureDuchenne
Newborn Screening and Genetic Testing for Duchenne Muscular Dystrophy: Introduction for Families
This resource offers important information regarding genetic testing for newly diagnosed families.
CureDuchenne
Palliative Care and Duchenne Muscular Dystrophy
This resource provides an introduction to palliative care’s function, benefits, and how it fits into the multidisciplinary care model for Duchenne.
Tom McNalley, MD
Associate Professor of Pediatrics
University of California San Francisco Benioff's Children's Hospitals
Video
The Benefits of Corticosteroids Along the Duchenne Journey
CureDuchenne is joined by Dr. Aravindhan Veerapandiyan, a Pediatric Neurologist from Arkansas Children’s Hospital, and Sheryl Marrazzo, a mother, grandmother and advocate in the Duchenne Community, for a 1-hour webinar on corticosteroids. This webinar discusses the role of corticosteroids in the Duchenne standards of care, highlights the effects of steroids after loss of ambulation, and includes a discussion on how corticosteroids play a role in the family unit over time.
Sheryl Marrazzo
Duchenne Mother, Grandmother and Advocate
4 Jake's Sake | CureDuchenne
Dr. Aravindhan Veerapandiyan
Pediatric Neurologist
Arkansas Children's Hospital
Video
Transition to Adult Care (& Living)
This resource provides an in-depth view of the current “Transition Toolkit” for individuals with Duchenne, as well as resources to support a happy and healthy adult life.
Christina Trout, RN, MSN
Advanced Practice Nurse, Neuromuscular Program
Department of Pediatrics, University of Iowa Stead Family Children’s Hospital
Video
