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CureDuchenne Research Support and Priorities
Hear from CureDuchenne’s Chief Scientific Advisor on our research support and priorities.
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Discusión sobre tecnología de próxima generación
¿Que sigue? Discusión sobre tecnología de próxima generación.
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Discussion on the Unique Dynamics in DMD-Affected Home
This resource presents a conversation about family dynamics, communication strategies and how to cope as a family unit navigating a Duchenne diagnosis.
Taylor Berhow, MSW, MPA
Social Worker and Neuro-behavioral Health Specialist
University of Utah Health
Video
DMD and Post-traumatic Stress
This resource presents information on how to cope with mental heath issues like anxiety and PTSD after a medical emergency.
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DMD Care Coordination
This resources provides a introduction to the common multidisciplinary care team for Duchenne and their individual functions, as well as tips on coordinating this team-based approach.
John Brandsema, MD
Child Neurologist and Neuromuscular Section Head
Children’s Hospital of Philadelphia
Video
DMD Clinical Trials: An Overview
This resource presents information on the clinical trial process, common clinical trial terms, updated trial processes due to telehealth, and more.
Video
DMD Genetics and Your Family
This resource presents information on genetic carrier health, carrier testing options and resources, family planning education, and carrier burden information.
Kimberly Nugent, CGC
Certified Genetic Counselor
Children's Hospital of San Antonio, Baylor College of Medicine
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Duchenne Introduction and Pipeline Overview
This resource presents the innerworkings of the DMD gene, Duchenne’s impact on the body, and provides and in-depth view of the pipeline of current treatments for Duchenne.
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Duchenne Muscular Dystrophy Emergency Information for ED Staff
This resource offers information for Emergency Medical Services professionals about the specialized aspects of emergency care for those with Duchenne.
