Focused on engaging families in conversations about the load they carry and how to manage life as a caregiver.
Social Worker and Neuro-behavioral Health Specialist
University of Utah Health
Professor of Pediatric Pulmonary and Sleep Medicine
Duke University
Focused on the intersection between physical needs and living a fulfilling life.
Associate Professor of Medicine and Co-Director
Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center
Associate Professor of Pediatrics
University of California San Francisco Benioff's Children's Hospitals
Professor of Pediatrics and Neurology and Director
UMass Duchenne Muscular Dystrophy Program at the University of Massachusetts Medical School
Focused on cognitive abilities and psychological wellness in individuals living with Duchenne.
Visiting Assistant Professor, Department of Pediatrics, Divisions of Pediatric Neurology, Psychiatry and Behavioral Health
University of Utah
Occupational Therapist III
Children’s Health and Rehabilitation Services
Assistant Professor of Neurology
Virginia Commonwealth University
Focused on empowering families to make informed decisions about their child’s care / personal care across all junctures of the Duchenne journey.
Child Neurologist and Neuromuscular Section Head
Children’s Hospital of Philadelphia
Duchenne Mother, Grandmother and Advocate
4 Jake's Sake | CureDuchenne
Advanced Practice Nurse, Neuromuscular Program
Department of Pediatrics, University of Iowa Stead Family Children’s Hospital
CureDuchenne Certified Physical Therapist
CureDuchenne Physical Therapy Program
An overview of CureDuchenne Link.
Senior Director of Clinical Operations | Director, CureDuchenne Link
CureDuchenne
Hear from CureDuchenne’s Chief Scientific Advisor on our research support and priorities.
A deep dive into the world of clinical and academic research, including input from multiple stakeholders, with the family at the center of it all.
Assistant Professor in Pediatric Neurology and Genetics
Children’s of Alabama | University of Alabama at Birmingham
Associate Professor of Pediatrics, Neurology and Neurotherapeutics
University of Texas Southwestern
Senior Director of Clinical Operations | Director, CureDuchenne Link
CureDuchenne
An inspiring conversation about living in the moment with a rare diagnosis.
Information and updates on exon skipping therapies and research from experts in the Duchenne community.
Group Vice President, Head of Research and Early Development
BioMarin
Senior Medical Director, Clinical Development
Avidity Biosciences
Senior Medical Science Liaison
Sarepta Therapeutics
