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Newborn Screening and Genetic Testing for Duchenne Muscular Dystrophy: Introduction for Families
This resource offers important information regarding genetic testing for newly diagnosed families.
Emergency Care Considerations for Individuals Living with Duchenne
This resource offers information for parents, caregivers and individuals with Duchenne about the specialized aspects of emergency care for those with Duchenne.
CureDuchenne
Duchenne Muscular Dystrophy Emergency Information for ED Staff
This resource offers information for Emergency Medical Services professionals about the specialized aspects of emergency care for those with Duchenne.
CureDuchenne
Communication Tips: A guide for any parent navigating a rare diagnosis
This resource provides tips on how to effectively communicate with doctors, teachers, family members, and more while discussing your child’s care and condition.
CureDuchenne
Recursos de fisioterapia de CureDuchenne
Este recurso proporciona información sobre las actividades en la piscina y las rutinas de estiramiento adecuadas.
Programa de fisioterapia certificado por CureDuchenne
Duchenne: Una Visión General Para Educadores
Este recurso proporciona varios folletos para ayudar a informar al educador de su hijo sobre las necesidades especializadas en un entorno escolar.
CureDuchenne
CureDuchenne Physical Therapy Resources
This resource provides guides to proper message and aquatic therapy techniques, safe transfers, and stretching routines approved by our CureDuchenne Certified Physical Therapists.
CureDuchenne Certified Physical Therapy Program
Duchenne: An Overview for Educators
This resource provides multiple handouts to help inform your child’s educator of the specialized needs in a school setting.
CureDuchenne
DMD Care Coordination
This resources provides a introduction to the common multidisciplinary care team for Duchenne and their individual functions, as well as tips on coordinating this team-based approach.
John Brandsema, MD
Child Neurologist and Neuromuscular Section Head
Children’s Hospital of Philadelphia
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