Esta presentación se enfoca en fisioterapia, estiramientos y transferencias seguras para personas con Duchenne y sus cuidadores.
CureDuchenne Fisioterapeuta Certificado
Children's Hospital of Phoenix
A brief overview of the strategy guiding efforts in gene therapy and gene editing, as well as critical updates from the companies in this space. Moderated discussion included.
Chief Science Officer, Ultragenyx Gene Therapy
Ultragenyx
Vice President, Disease Area Executive, DMD
Vertex Pharmaceutical
Senior Medical Science Liaison
Sarepta Therapeutics
Presentations by CureDuchenne Champion families on how they found success in fundraising by bringing their community together.
Una presentación interactiva enfocada en aprovechar la creatividad en la vida cotidiana con actividades, juegos y ejercicios inclusivos, además de utilizar tecnología/equipos adaptables para superar las expectativas.
CureDuchenne Certified Physical Therapist
CureDuchenne Physical Therapy Program
Occupational Therapist III
Children’s Health and Rehabilitation Services
Quantum Product & Technical Education Manager
Pride Mobility
Esta presentación proporciona información sobre genética básica, salud del portador genético y planificación familiar.
Consejera Genética Certificada
Hospital de Niños de San Antonio
Una cálida bienvenida del equipo de CureDuchenne y unas palabras de algunas familias campeonas de CureDuchenne sobre cómo lograron el éxito en la recaudación de fondos al unir a su comunidad.
A letter from Jennifer Wallace Valdes, PT to share with your child’s teachers. This document serves to familiarize them with Duchenne, the physical limitations posed, and reasonable accommodations for the school environment.
CureDuchenne Link is a centralized data hub which combines clinical data, biosamples, and patient reported data for individuals with Duchenne and Becker muscular dystrophy, as well as carriers. Information and samples provided by participants are coded and available for use by approved researchers across the world.
This resource presents anxiety and depression in individuals with Duchenne and introduces cognitive-behavioral strategies to mitigate these issues.
