Dear Duchenne Community, We are writing to provide some additional information to accompany our press release (attached) this week about the status of the rolling New Drug Application at the […]
NEWPORT BEACH, Calif. (September 10, 2019) – Finding the right mobility equipment for Duchenne muscular dystrophy patients can be a time intensive and frustrating process. To help take the guesswork […]
The nonprofit CureDuchenne has chosen veteran advocacy leader Erin Frey to become its first director of Duchenne muscular dystrophy (DMD) advancement efforts. Read the full article HERE.
More than $900,000 will go to support CureDuchenne’s mission to find a cure for Duchenne muscular dystrophy and support patients and families affected by this rare genetic disease, all thanks to […]
Scientists are testing nearly two dozen treatments that might stop the disease. But enrollment in the trials is very restricted, and few children qualify. Lucas was 5 before his parents, […]
When their only son, Hawken, who is now 22, was diagnosed in 2002 with the progressive, muscle-wasting disease Duchenne muscular dystrophy, Paul and Debra Miller took swift action. Read the […]
CureDuchenne, one of the nation’s leading Duchenne muscular dystrophy (DMD) charities, is sponsoring 30 events across the U.S. this year to educate patients and their families about all aspects of […]
In last year’s action film “Rampage,” which featured Dwayne “The Rock” Johnson, CRISPR gene-editing technology turns a gorilla, a wolf, and a crocodile into monsters the size of skyscrapers that destroy Chicago. […]
When it comes to Duchenne muscular dystrophy (DMD), Leonardo Feder knows he’s among the lucky ones. A resident of São Paulo, Brazil’s largest city, Feder was diagnosed with Duchenne at […]
