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CureDuchenne is giving away FREE MyID Medical Bracelets to individuals in the United States who are living with Duchenne to help provide peace of mind.
Duchenne muscular dystrophy is a rare and complicated disorder with many unique needs. Individuals with Duchenne often encounter health care professionals in emergency situations who know very little about the disease. Medical ID bracelets are a great way to communicate important information about Duchenne and its potential complications to EMS professionals in urgent medical situations.
*Note: The medical ID bracelet is free for individuals living with Duchenne, but shipping costs apply.
Ensure that Emergency Medical Services (EMS) professionals have clear and immediate access to information that may impact health outcomes for an individual with Duchenne in emergency situations.
Customizable MyID Medical Bracelet Profile Contains Specific Duchenne Information including optional, fully customizable elements
- Emergency contacts
- Medications
- Medical Imaging
- Insurance coverage
- Labs
- Pharmacies
- Allergies
- Physicians
- Procedures
- Family History
- Immunizations
- Easy access to Duchenne profile is immediately available to EMS professionals. In an emergency, the information can be accessed in several ways:
– QR code – laser engraved in the bracelet that can be scanned
– Phone # – 24/7 staffed contact
– Secure website – EMS enters the ID & PIN# on the bracelet - Made from a comfortable silicone material with a simple snap and tuck fastener. Sized bracelets are adjustable for good fit:
– Medium – adjustable to 6-8″ in length
– Large – adjustable to 7-9″ in length - Durably designed with an active lifestyle in mind and 100% waterproof
- Each bracelet comes with a set of 4 stickers that can be placed on a car seat, wheelchair, or on the back of a cell phone for additional notification points
- Strict security measures are in place to ensure your private information is stored safely and securely
- 1-year warranty and tech support
Frequently Asked Questions
It’s impossible to be with your child 100% of the time. Emergencies can arise outside the home, at school or at a friend’s house, where people are less familiar with Duchenne.
In an emergency, if an individual is not able to communicate EMS would have no way of knowing an individual has Duchenne. Paramedics are trained to look at the wrist to determine if there are any medical problems they should be aware of.
A typical medical ID bracelet is limited to only a few lines of text, which is not enough to communicate potential complications such as adrenal insufficiency, fat embolism syndrome, or cardiac insufficiency. The MyID Medical Bracelet profile also includes optional, fully customizable elements such as:
- Medications
- Allergies
- Emergency contacts (automatically notified by text message whenever the profile is accessed)
- Physicians
- Insurance coverage
- Procedures
- Labs
- Family History
- Pharmacies
- Immunizations
- Medical Imaging
- The medical ID system using the MyID platform provides an extensive medical profile that is completely customizable and immediately available anytime, anywhere.
- First Responders can access a MyID medical profile in 5 seconds or less, telling them who the individual is, who to contact, and important information about potentially life-saving medical needs.
- CureDuchenne has ensured that every profile connected to the bracelets given away are pre-filled with Duchenne information needed by first responders.
Yes. Please order 1 for each child with Duchenne, including their name and D.O.B in the product notes of each individual bracelet. Add them to the cart one at a time, and purchase all at once to get multiple bracelets with only one shipping fee.
There is no limit. CureDuchenne provides one bracelet and one sticker kit to be linked to your profile. If you would like to order additional products, feel free to visit www.GetMyID.com where you can find an assortment of products that fit your family’s needs. You can link all items (for example, 10 bracelets, 5 sticker kits, and a wallet card) all to one profile. Once you make an update to that profile, all your linked products are updated instantaneously.
Yes.
STEP 1: Create your online profile at www.GetMyID.com.
STEP 2. Link the code on the back of the bracelet to your online profile.
STEP 3. Link the code on the sticker set to your online profile.
NOTE: The ID#s and PIN#s are different for the bracelet and the stickers.
My ID recommends using stickers on your child’s mobility device (stroller, scooter, wheelchair), cell phone, car sets, or perhaps a device they use at school. The stickers can be used any way your family sees fit.
Your private health information is only viewable by the person logging into the account. First Responders and others who scan the QR code can only see the public profile view. Each section of the profile has a toggle button to switch from Public to Private View. The public view is what’s shown when the QR code is scanned. For more information refer to MyID’s terms and conditions.
QR stands for Quick Response and is sort of like a barcode. You may have seen them on advertisements or even on your bananas! They essentially connect the physical world with the digital world. They can store data and are scannable by any smartphone, which we think is perfect for something as complex as a medical profile.
All sections of the profile are public by default. Each section of the profile has a toggle button to switch from Public to Private View. For more information refer to MyID’s terms and conditions.
If the bracelet is too big for your child, please contact cares@cureduchenne.org.
If you lose or misplace your bracelet/stickers, go to your online MyID account, click “Manage Linked Product”, and unlink it. It can be re-linked to the same account using these steps if it is found. Additionally, you can order a new bracelet online from CureDuchenne if one is lost.
CureDuchenne is currently exploring how best to provide these bracelets internationally given regional differences in emergency management guidelines. If you live outside of the United States and are interested in ordering a CureDuchenne medical ID bracelet, please sign up here and we will contact you should they become available in your country.
Yes. The profile appears in the phone’s local language settings (supported languages are English, French, Spanish, Japanese, Arabic).
Please note: the Emergency Care Guidelines for Duchenne that are pre-loaded onto the MyID bracelets are written under the United States Standards of Care and will always appear in English. Other countries’ standard of care guidelines may not be the same as they are in the United States.
Yes. The profile appears in the phone’s local language settings. If you are using the MyID web app, there is a button at the top-right corner of the screen to change the language from English to another language (supported languages are English, French, Spanish, Japanese, Arabic).
Email Cares@CureDuchenne.org to speak with a team member about exchanges and returns on Medical ID Bracelets. If there is a technical issue and/or a question related to the MyID warranty, contact info@GetMyID.com.
CureDuchenne’s medical ID bracelets are currently limited to individuals living with Duchenne. If you would like to purchase a medical ID bracelet for someone else, please visit www.GetMyID.com.
MyID is a company CureDuchenne is partnering with to provide medical ID bracelets that include Duchenne-specific emergency care information. The medical profile can be accessed anywhere, anytime using bracelets, sticker kits, wallet cards and an app on your phone. It can be used to manage your medical information, save your life in an emergency, or clearly communicate important information to a health care provider.
Yes! MyID Profiles are free for life with the option to add Plus features. For those who receive the MyID medical ID bracelet free from CureDuchenne, the MyID Plus features are included through December 2022 at no cost. At that time, you can decide if you’d like to continue with the basic profile features (free) or subscribe to MyID Plus.
For those who receive the MyID medical ID bracelet free from CureDuchenne, the MyID Plus features are included through December 2022 at no cost. At that time you will be notified and have the opportunity to decide to switch to the MyID basic profile or pay a fee of $1.99/month to continue with the MyID Plus.
For $1.99/month, your Plus subscription unlocks powerful features including all of the MyID basic profile features plus documents, sharing, and the ability to notify your emergency contacts at the tap of a button.
Yes, My ID has a free app for iOS and Android. The app makes it even easier to have your medical information right at your fingertips. There’s also a feature called QR Wallpaper which allows you to set a scannable QR code right on your phone’s lock screen.
Make an Impact
You can advance the care, treatment and cure for Duchenne muscular dystrophy. Contributions in any amount can truly make a difference and can be credited to a fundraiser or event from the list below.
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