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Letter to the Community from PTC Therapeutics
Dear Duchenne Community, On behalf of all of PTC, we want to thank all of you for supporting the advisory committee review of ataluren. As you know, the meeting was […]
Every Bit Matters: Nutritional Suggestions for Duchenne Patients
Leading a healthy lifestyle is something that any individual should aim towards. For those with Duchenne, making nutritional modifications has the potential to improve their overall health. Research has indicated […]
Q&A with Nirmal Khadka, founder of Muscular Dystrophy Organization Nepal
CureDuchenne firmly believes in working together to help any child with Duchenne muscular dystrophy find the support they need. Duchenne is a disorder which knows no cultural, economic, or social […]
CureDuchenne is funding Dr. Eric Olson’s research to develop CRISPR/Cas9 gene editing for Duchenne
Today, Dr. Eric Olson spoke at the UT Southwestern Wellstone Muscular Dystrophy Center Duchenne Muscular Dystrophy Clinical Symposium. He presented promising pre-clinical data about gene editing using CRISPR/Cas9 for Duchenne. […]
#DuchenneChat hosted by CureDuchenne
CureDuchenne hosted a live Twitter chat on September 20 to raise awareness and address the important issues facing the Duchenne community. It was an opportunity to hear from patients, parents, […]
Join CureDuchenne for a live Twitter chat with special guest Dr. Perry Shieh from the Center for Duchenne Muscular Dystrophy at UCLA
CureDuchenne is hosting a Twitter chat #DuchenneChat on September 20 at 11 a.m. PDT/2 p.m. EDT to raise awareness and address the important issues facing the Duchenne community. This Twitter […]
CureDuchenne has Funded More than $1 Million for Dr. Flanigan’s Duplication 2 Research. Here’s the Latest Research Update
Dr. Kevin Flanigan from Nationwide Children’s Hospital provided an update on his Dup2 research during a CureDuchenne hosted call with families on September 6. Back in 2010, Dr. Flanigan told […]
School: It’s All About Balance
Guest blog by Tiffany L. Cook, MS, CCC-SLP Words of advice from Wil’s elementary school Occupational Therapist, Jessica Berger, MOT, OTR/L, “When there are little breaks taken throughout the day, […]
Welcome Tiffany Cook, Family Resource Manager
CureDuchenne is proud to announce and welcome Tiffany Cook as its new Family Resource Manager. She, along with the CureDuchenne team, will be enhancing and presenting family education materials and […]