In this webinar, moderated by Tiffany Cook, MS, CCC-SLP, Senior Director of CureDuchenne Cares, the mental health presentation by Paige Lembeck, PhD, will be followed by several presentations from biopharmaceutical companies […]
Author: Erin Frey, Senior Director of Advocacy, CureDuchenne Watching the news over the last few weeks has ranged from confusing to disheartening, overwhelming and sometimes, let’s admit it, a little […]
Today, we are extremely excited to announce a new partnership with Dyne Therapeutics, an innovative organization whose FORCE™ Platform is working to bring transformational therapies for serious muscle diseases, including […]
WALTHAM, Mass., March 31, 2020 – Dyne Therapeutics, a biotechnology company pioneering targeted therapies for patients with serious muscle diseases, today announced an equity investment from CureDuchenne Ventures. The funding […]
NEWPORT BEACH, Calif., (March 24, 2020) – CureDuchenne, the leading global nonprofit focused on funding and finding a cure for Duchenne muscular dystrophy, is rolling out a comprehensive suite of online resources for […]
View Letter to the Duchenne Community As recently as March 9, CureDuchenne was helping NS Pharma get the word out about their newly launched Expanded Access Program for enabling access […]
THE CURRENT ADVICE FROM THE PROFESSIONAL SOCIETIES IS TO CONTINUE WITH ACE-I AND ARBS. The European Society of Cardiology (ESC) Council on Hypertension announced their stance in a positioning statement […]
As a mom, a family, a friend, an advocate and a community, we know that the spread of the coronavirus disease 2019 (COVID-19) is clearly creating challenging times that call […]
If you or your child is covered by Medicare – Starting on March 6th, Medicare has broadened coverage for telehealth services so that you may be able to access your […]
