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This webinar, in partnership with the University of Kansas Medical Center, explores topics like achieving milestones, quality of life, and setting goals in families navigating Duchenne muscular dystrophy. The panelists also discuss how to incorporate quality of life metrics into clinical care.
This webinar includes a survey for individuals with Duchenne to participate in: https://redcap.kumc.edu/surveys/?s=YCYNMRDLJ9