Dr. Paolo Bettica will review recently completed study analysis for the Italfarmaco Phase 3 randomized controlled trial of givinostat in boys with Duchenne muscular dystrophy (DMD). He will answer your […]
The “What?”, “When?” and “How?” that everyone is asking. This webinar will leave you with a better understanding of the different types of treatments and cures for Duchenne that are […]
Insurance companies continue to deny complex medical equipment for patients whom it is medically necessary. The rules keep changing. It can be difficult to keep up with the latest equipment […]
Pfizer’s Global Clinical Lead for Rare Neurological Diseases, Beth Belluscio, MD-PhD, and Debra Miller, Founder and CEO of CureDuchenne, sat down to educate the Duchenne community on Pfizer’s CIFFREO Trial […]
How You Can Help Researchers Find Treatments UPDATE: This event has been postponed due to a last-minute issue and will need to be rescheduled. Don’t miss this informative webinar on […]
It is well understood that resting Ankle Foot Orthoses are recommended as standard of care for those with Duchenne muscular dystrophy. In many cases, that is the only lower extremity […]
**UPDATE** Duchenne gene therapy developers and scientific experts discuss AAV in DMD: Antitransgene SAEs. Please watch this webinar to learn more about recent concerns in gene therapy clinical trials. **ORIGINAL POST** […]
In this webinar, the NS Pharma team presents updates for the Duchenne community: Access programs for Viltepso, which is suitable for individuals with Duchenne who are amenable to exon 53 […]
Our presenters take us through the ins and out of mobile arm supports that are currently available, how they work, who they work for and other details. Many individuals living […]
