Celebrating Motherhood and the Special Ties That Bind Moms

Twenty years ago I was honored with the greatest gift I could have ever imagined, motherhood. As I think about the most precious gift in my life, my son Hawken, I am elated with happiness. Watching him grow up, his curiosity, big heart and sense of humor continue to inspire me and give me hope for the future.

Every day as a mom with a son living with Duchenne is different, and some days are more difficult than others. What keeps me going is the thought of my son’s future and the reassurance I feel when I remember that all of us are in this together. As we fight for a cure, we share in the triumphs; we share in the joy, the love, the pain, all of it. We share an experience that not many other families can relate to, which is why our community is filled with so much compassion.

When I started CureDuchenne, I didn’t realize just how much of a community would grow out of our fight for a cure.  This community keeps me motivated, strong, and positive in this journey. I know I am not the only mother in this fight, and I know I am not the only mother who wants to see her son live a full life. We’ve come a long way in this battle against Duchenne, but still have a long, long road ahead. Knowing we are in this fight together makes us stronger and better.

So today, on Mother’s Day, I want to take a moment to say thank you to all the moms, aunts, grandmothers and women who stay strong in the face of this cruel genetic monster called Duchenne. Thank you for your dedication to your sons’ hearts and health, and for being their strength to fight each day.

From one Mom to another, I want to remind you to take a moment to appreciate yourself, all that you do for your sons, and all that you do to inspire other members of the Duchenne community. Like every other day, I will cherish the moments I have with my son and be forever grateful for the day he made me a mother.

I wish you all a Happy Mother’s Day from the bottom of my heart.