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Italfarmaco Fall Newsletter – Givinostat Program
View the Italfarmaco Fall Newsletter HERE.
CureDuchenne Appoints Lianna Orlando, PhD, to the Position of Senior Director of Research
Newport Beach, CA – (September 19, 2019) – CureDuchenne, the leading global nonprofit focused on funding and finding a cure for Duchenne muscular dystrophy, announced today that Lianna Orlando, PhD […]
Edgewise Financing Helps Propel Important New Therapies for Muscular Dystrophy
CureDuchenne Ventures is pleased to support Edgewise Therapeutics with innovative research for Duchenne. The Duchenne community needs multiple shots on goal and CureDuchenne continues to lead the way to impactful […]
Free Webinar: Italfarmaco Givinostat Development Program Update
The webinar will review the Italfarmaco Givinostat development program for Duchenne and Becker Muscular Dystrophy. Content that will be covered, includes: Updates from the EPIDYS Study, a phase 3 clinical […]
Duchenne Clinical Trials & Drug Development
In rare diseases such as Duchenne, where the disease population is small, the drug development process can vary from that of more common diseases, and totally new treatment approaches such […]
CureDuchenne Helps Duchenne Families Make Informed Decisions About Durable Medical Equipment with New Interactive Website
NEWPORT BEACH, Calif. (September 10, 2019) – Finding the right mobility equipment for Duchenne muscular dystrophy patients can be a time intensive and frustrating process. To help take the guesswork […]
Sarepta U.S. Patient Affairs – Newsletter for the Duchenne Community
View the Sarepta Summer 2019 Newsletter HERE.
Erin Frey to Lead CureDuchenne’s DMD Advocacy Efforts
The nonprofit CureDuchenne has chosen veteran advocacy leader Erin Frey to become its first director of Duchenne muscular dystrophy (DMD) advancement efforts. Read the full article HERE.
CureDuchenne Launches Website to Assist Newly Diagnosed Duchenne Families
NEWPORT BEACH, Calif. (August 26, 2019) – Receiving a positive diagnosis for Duchenne muscular dystrophy is devastating for new parents. Likewise, learning about the rare disease and how to care […]