El impacto de Duchenne en la familia TEMAS: Genética Salud y afrontamiento del portador genético Planificación familiar Hablar con familiares / amigos / médicos / profesores Impacto financiero Se le […]
This presentation by Kimberly Nugent, CGC at Children’s Hospital of San Antonio is part of The Family Unit webinar and covers the following topics: genetic carrier health, carrier testing options […]
This webinar is a roundtable with scientific and medical experts covering recent updates to COVID-19 vaccines and how they relate to the Duchenne community. You’ll be prompted to enter your […]
In this webinar, Sarepta Therapeutics discusses their commitment to individuals living with Duchenne and the community. They provide an overview of their RNA Exon-Skipping therapies as well as Sarepta’s patient […]
This webinar covers the following topics: Co-parenting/caregiving, Marriage and Communication Genetic Carrier Health Ask the Expert Session You’ll be prompted to enter your name and email address to view the […]
Meet the leaders at Edgewise Therapeutics and hear their company goals related to treatments for Duchenne muscular dystrophy. You’ll be prompted to enter your name and email address to view […]
Join us as we continue this educational series through a new lens: Quality of Life. This webinar will cover the following topics:Emergency Care | Dr. Stefan Malin, MD, MSNavigating “Re-entry” […]
Learn more about REGENXBIO’s new gene therapy program for the potential treatment of Duchenne. This webinar provides an overview of the company and RGX-202, a novel, advanced micro-dystrophin gene therapy […]
This webinar provides an update from Astellas on their study to assess the safety, tolerability, and preliminary efficacy of ASP0367 (MA-0211) for boys with Duchenne Muscular Dystrophy. You’ll be prompted […]
